I was 27 and had just welcomed my second baby when I noticed something was a little 'off'. Two years later and I'm a quadriplegic and need 24/7 care. This is my story

Amy Lynch had her whole life ahead of her. 

The then 27-year-old and her partner Simon were the proud parents of two baby daughters and lived a 'normal, happy life' tending to their farm in regional Victoria. 

But in August 2022, life as they knew it changed forever when Amy was diagnosed with motor neuron disease (MND) - a terminal neurological disorder that affects the brain and nerves.

'Living with MND is like being trapped in your own body. I'm an inferior version of myself,' Amy, now 29, told FEMAIL. 

Before the shocking diagnosis, the young couple would always tend to broken fences on their farm, feed cattle and visit family in Melbourne.

Now Amy is a quadriplegic, can barely talk, is unable to do simple tasks such as dress or shower herself, and has constant support from carers and family.

The most difficult part of her tragic situation is thinking about missing her children's milestones as they grow up. 

'Ever since I can remember I have wanted to be a mum, now that I am it feels so unfair that my girls will never know me without this disease. They won't see their mum and dad together the way we dreamed of on our farm living a busy but simple life,' Amy said. 

The minor symptoms began while Amy was seven months pregnant with her second daughter Georgia in 2022, but at the time doctors thought it was pregnancy-related. 

She started to limp and developed a 'waddling gait' and experienced severe cramps, leg spasms and frequent falls toward the end of her pregnancy. 

Amy herself didn't think anything sinister was occurring but admitted it was unusual.  

After giving birth in May 2022 the symptoms worsened and five days later she struggled chopping food and the limping worsened. 

Prior to the diagnosis, Amy enjoyed styling her hair but noticed even the simple task felt difficult. 

'My arms would get sore while washing or blow-waving my hair, which I would do once or twice a week,' she said. 

One day when Amy was changing Hannah's nappy, who was 18 months old at the time, the baby kicked her away causing her to stumbled backwards and hit the door. 

That's when Amy knew something 'wasn't right'.

Despite having several tests, they showed no signs of anything wrong. So a 'process of elimination' began and before coming to the conclusion that Amy must have MND.  

There is no test for MND meaning doctors need to eliminate all other possibilities before landing on the diagnosis. 

This also meant she'd likely have just over two years to live after being diagnosed.  

'There is nothing that could ever prepare you for something like this, it's an emotional roller coaster wondering what is next? Will I wake up tomorrow and not be able to talk? Will my legs still be strong enough? Will I still be able to eat and drink?' Amy said. 

'Thinking about our future is something I would always dream of and now we plan more month to month. It's too heartbreaking thinking of what I will miss out on.

'I think I am so lucky to have my two beautiful girls to focus on.' 

Shortly after being diagnosed Amy and Simon decided to get married and organised the wedding with a guest list of 100 people within five months. It was a joyous occasion.  

Today life looks a lot different compared to how it did in 2022 but Amy takes it day by day. 

She can't drive, requires a walker to get around the house and a wheelchair when in crowds and travelling long distances. Amy is unable even to pick up her kids anymore. 

The causes for MND remain unknown and there are no treatment options available. 

Currently, in Australia, only one medication approved by the TGA slows the progression of MND. As Amy is still breastfeeding Georgia, she is ineligible. 

'We try to live as normal life as possible - we still go on holidays, road trips and take our caravan,' she said. 

Amy teared up thinking about her future and her family's future, but tries to remain positive. 

'I always say there's no point being sad when you're so much to be happy for,' she said. 

She's also noticed a difference in how people treat her.

'When you look disabled, people treat you like you are even though your mind is fine. I still think in the exact same speed as I did before I was diagnosed just my body doesn't keep up,' Amy said. 

'So it's important to treat everyone the same.  

'MND progresses differently for everyone. Let's hope I'm around for a little while longer yet. I hope that being a younger patient I'm an anomaly.'

You can find a link to Amy's GoFundMe campaign in the bullet points